Category Archives: special needs

Never Say Never…2016 Year of Surprises

2016 seemed to start of just fine, perhaps a bit more boring than usual. Things seemed on an even keel for once. My oldest son was making strides with his autism and the memories of constant struggles were slowly fading away as all of his (and my) hard work, time, and money over the years seemed to be FINALLY paying off in spades with consistently calm behavior, excellent self-expression and language, increasing social skills, no more potty accidents, and only good days at school. We were badassing autism, I would say. My youngest son had found relief through acupuncture from the tics that tormented and embarrassed him so badly at school due to his Tourette’s disorder. He had become BFFs with the neighbor boy. With our boys doing so much better and both of us working stable jobs, my husband and I were getting along better than ever before and having less heated disagreements over house chores, finances, and such. In early May, we went to a winery and I remember feeling caught by surprise and delight that I was falling back in love with my husband as we watched the sun set drinking glasses of Malbec on the patio. The overall stress level for our family seemed to be getting to that of what most people experience in their normal day to day lives. We had been living in financial and autism crisis mode for so long, I had forgotten what it felt like to just kind of coast through life some days. I posted cute pics of the kids or what new recipe I tried that night on Facebook. I went to yoga class regularly, folded laundry while watching Netflix, squeezed in the occasional coffee with a friend, date night with my husband and juggled the pressures of my jobs like a boss.

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Then, that equilibrium that I hoped would be my new normal slowly disappeared in a domino effect leaving me in utter brokenness, some of the darkest nights of the soul I have ever experienced, on my knees pleading to God, crying my eyes out in my car, calling doctors begging for help for my son, sitting by the lake talking myself out of wanting to swim away and never come back, counseling sessions, trips to multiple specialists for a new medical and mental health condition my son developed called PANDAS (“because moderate autism just isn’t enough is it God?” I lamented) which occurred after a bout of strep throat. He was also starting puberty. Crap. Humbled. Waving the white flag by calling the Marcus Autism Center in Atlanta crying and breaking down begging for someone to help my son and to help me. They did….with a psychiatry appointment. The last thing I ever wanted for my son. Never say never…..

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We had previously experienced so much miraculous success with naturopathic medicine and diet changes, public school special education programs, SonRise program and therapies (Occupational, Speech, Aquatic, and Hippotherapy), that I NEVER thought I would be one of “those parents” (sorry, I was just so ignorant) who put their kids on psych meds. As a mental health professional, I understood theoretically that there is a time and place for meds, but I observed that often parents tend to just jump the gun and go straight for meds rather than trying other treatments first and using meds as a last resort. I still advocate a conservative approach to medication. But, where I went wrong was assuming that because I am a mental health professional, well versed in natural treatments for various ailments as well, that my son would just NEVER need meds. WRONG. Last resort was exactly where we were at. At least I could feel confident I had exhausted all the options first I suppose.

PANDAS (see article) plus the onset of puberty made autism look like a cake walk. PANDAS made debilitating OCD symptoms, insomnia, and aggression appear. These tormented and took over my once sweet and docile son’s daily life and thus my life, my youngest son’s life, my husband’s life, and even affected our extended family and friendships. We had to stop going to church, taking him to the store, visiting friends, or going out to eat as a family. He just couldn’t handle noisy or crowded places anymore. We would spend hours trying to get him to finish up his rituals of closing doors certain ways or counting to 12 over and over. One night, I stayed up until 2am waiting for my son to stop repetitively banging the bathroom door to the count of 12 over and over again for hours. If we tried to get him to stop or even so much as breathed too loudly during these rituals, we would be violently attacked. My son is as tall and weighs as much as I do. I would have heated disagreements with my husband and my mother about medication. I was desperate and wanted to try it for my son, they were adamantly opposed. One day, one of my younger son’s friends came over to visit and made the mistake of “opening the door wrong” and my son went into a rage. When I tried to calmly de-escalate things (even thought I was on the verge of a panic attack) and make sure my younger son’s friend wasn’t attacked, my son started pulling me by my hair to the ground where we wrestled and I had to pin him down just to get him to let go. I am a trauma survivor and every time my son had one of these episodes I would end up going into the bathroom crying and barely able to breathe in the throws of a panic attack. I would have to drink a small glass of wine just to feel like I wasn’t going to hyperventilate. I was worried about one of us being seriously injured or that I would snap. I just wanted it to STOP.

I knew hospitalization was an option people would advise if I told them the truth, but I refused to put my son in a mental hospital where God knows what would happen to him. I saw news reports of children at local mental hospitals dying or being scalded in the bath. I would rather have my ass kicked all day long or let him kill me than risk inhumane and traumatic treatment for my baby. This is how so many parents feel and why so many families end up in tragic situations. We can’t trust the quality of the help and many can’t afford it if they could trust that care would be adequate. “I am a mental health professional, I will make my home my son’s treatment facility”, I decided. I just didn’t have prescribing privileges, so I needed a doctor’s help. That’s when I reached out to Marcus Autism Center. They normally have a 6-8 month wait list for psychiatry. After I told them the truth about what was happening and how I didn’t honestly know how much longer I could take it, they worked us into a cancellation spot 4 days after my call. I just had to hold on 4 days.

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The first medicine, Clonidine, helped so much with sleep. My son sleeping again helped me feel like I might make it after all even though the days continued to be torment. I found the place he raged the least was in the pool, so every day off was spent at the public pool for as long as we could stay. I still had to pull myself together and make it into work looking like my son hadn’t been attacking me and act as if nothing was wrong and do my job as a mental health professional. It doesn’t make good water cooler talk to discuss how your son kicks your ass if you breathe wrong when you work at a domestic violence victim’s services center. I needed to keep my job and my paycheck. Next, we added in Prozac supposedly for the OCD, which made my son violent and manic all of the time. Now, I had a child who was in an irritable mixed state mania plus it didn’t do crap for his OCD and PANDAS. I called the psychiatrist and told her I was stopping the Prozac. She wanted to try increasing his dose at first, but I said hell no as politely as possible (you HAVE to advocate and speak up to survive this thing as a parent) and she made an appt for us to come in the next day for another treatment plan. That’s when the decision was made to put my son on Risperdal. As a hippie, crunchy type mom this was a “big gun” antipsychotic med I did not trust and did not want to try. It was going to make my son diabetic and make him grow breasts, I feared. But, in utter desperation I honestly would have tried a tranquilizer dart for a bear at that point so I said “what the hell? I don’t even know anything anymore, screw everything I think I know” and got the prescription filled. I lied to my husband about it. Within just a few days my son was BACK. He kept getting better day by day, calmer, happier, engaging with us, not zombied out like I had feared. Biting himself less, attacking less, then I realized days had gone by and he hadn’t gotten physical with us, I hadn’t had to tell my younger son to lock himself in his room for safety. It was a MIRACLE. I finally told my husband and he cried because he finally had to admit that our baby did need meds and that they were helping. This isn’t what we had wanted to do. But never say never….

After he was stabilized mentally, I had the energy and strength to start going more hardcore into researching PANDAS and treatment options. I found a pediatrician in Atlanta (Dr. Rodbell) who takes our insurance and is PANDAS informed (many doctors aren’t) and we got on the wait list to see him. We started a treatment protocol of long-term antibiotics. This made me cringe because we avoid antibiotics in our crunchy natural household like the plague. Never say never….

Lots of driving back and forth to Atlanta ensued (about 1.5 hours away from our home). I somehow shuffled my work schedule around to be off some half days to take my son to his specialists and therapies myself and not lose hours. I proceeded to get quietly then loudly pissed off at my husband for working his 9-5 job, going about his business, and not really seeing all that was going on in my world at home in the “mental hospital” I ran while I wasn’t at work at a domestic violence crisis center and all of the stress that I felt was damn near killing me. I said I would never be “martyr mom” who did absolutely nothing for herself, but that’s exactly who I became during the Summer. There was no time for me to even think about what I might like or want to do. I didn’t go to yoga class for weeks. Those who know me know that I need my yoga just to stay sane and that I NEVER miss. I wasn’t sane. I looked like shit. People probably thought I was on drugs or worse. Nope. Hanging in there. Pulling up at the school in my PJs to drop the kids off late. I never imagined I would let myself go like that. I fought so hard to not let that happen, but it did. Never say never…

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I came out of the “Summer of Hell” now embracing the wonders of psychiatric medication (still as a last resort, but one I wish I had tried much sooner before things came to a crisis point when I barely had the will to live left). Never say never. Crunchy hippie natural mama meets hell yes for RisperDONE. That really is the drug name. I joke with my husband that I would gladly make a TV ad for Big Pharma smiling and saying in my sweetest Mary Poppins voice: “RisperDONE…for those times when your child’s aggression and violence make you want to say I’m just DONE son!”

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So, we were back on track with my son’s mental health. We resumed his therapies and he went back to school no longer headbutting the teacher and giving him a bloody nose now that his meds had him stabilized. Life seemed to level out….but that feeling of love for my husband that had surprised and delighted me when we had that winery date watching the sunset on the patio overlooking the vineyards had gone…somewhere…away….we had devolved over the course of that summer into being simply fellow survivors living in the same fresh hell.

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We tried to maintain connection the best we could. We never stopped talking or being physically intimate, if nothing else just for moments of free stress relief….but the connection, the love, the emotion just wasn’t in it. We were both like shell-shocked zombies stuck together by trauma bonding. I found us a marriage retreat for special needs parents and was so excited to go in October. This was going to fix everything, right? We just needed to chill out and really connect. Love would surprise us again…right? Sadly, my precious Grandma had to have emergency open heart surgery to fix several life-threatening issues a month before our retreat. My Mom is our only respite care provider by choice because I have high standards and trust issues. She is the only person I am confident can handle my boys as well as I can over long periods of time. She had to stay in the hospital with my Grandma for over a month. We had to cancel our trip. I cried and soldiered on. I was worried about my Grandma, but she came through and is doing well thank God! We registered for the December retreat instead. We went on the retreat, connected, had fun, laughed, had one spat about housework, but overall it was a fabulous time with new friends who “get” what living the special needs kiddos lifestyle is like. Love didn’t arrive to take us by surprise as it had done at the winery, but something else was happening. It felt cleansing, painful, but good. We did realize how much we still have in common and how much we enjoy each other’s company still after all these years.

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Then, one week after the retreat when I’m walking on cloud 9 all hopeful thinking things are starting to maybe look up for the first time, we had gone out for sushi, picked up the kids at my Moms, and just had to get them put down to bed in order to continue our date night 😉 So, I’m walking into the kitchen all la-ti-da in my pink PJs to get a drink of water after putting the kids to bed when I’m hit square in the face with the fact that my husband is not who he claims to be at all, not Mr. Self-Proclaimed feminist Christian who is sensitive to the fact that I spent years in therapy getting over anorexia and trauma. That every time he portrayed himself as “someone who doesn’t struggle with THAT” he was lying. Nope, he was all of a sudden in a flash of a second none of these things he had so frequently and vehemently claimed to be. He was cheating on me. He was some shady bastard I didn’t even know anymore. I won’t go into the gory details out of respect for him, but there was no mistaking the proof. In this age of technology, it can be confusing what even constitutes “cheating” anymore, but when a husband and wife discuss and agree upon THEIR boundaries, needs, and definitions then anyone who violates that while their wife is looking forward to them coming to bed and paying her some attention is cheating, plain and simple. Cheating your thirsty spouse out of your love, attention, and affection and putting your sexual energies into someone else is cheating. And it makes that person wonder why? Am I not good enough? Do I look bad? Should I start starving myself again and undo the 6 years of therapy that got me to the point of being able to say “I’m no longer anorexic at all and I am actually able to view myself as beautiful FINALLY”? When my husband would support my recovery and tell me he thought I was more beautiful not scary skinny, was he lying to me?

Regardless of how it went down, in that moment I felt everything I believed to be true crumple into a big ole pile of bullshit. I could barely stand. I yelled the first thought that raced through my mind, “Well I guess I’ll just go out and do whatever I damn well please with whoever I damn well please now (expletive) huh!” and ran to the bathroom to throw up. I threw up over and over again all night long. It was like labor. I felt my body, the one thing that has never betrayed me and has always tried to protect me, trying to empty me of whatever was causing me to feel so sick. My body, unlike my husband, was trying its damnedest to protect me and cleanse me of anything noxious or harmful to my health. My mind was whirling around. I always said that I was the type of woman who wouldn’t put up with certain types of bullshit. I won’t put up with disrespect in my own house after I bust my ass at work all day and take care of the kids anytime I’m not working. I won’t put up with cheating when I’ve offered the option of an open marriage. I just won’t abide a liar who claims the highest fidelity in order to coerce loyalty from me. I own my home with only my name on it. I make my own money. I pay my car note. I am by no means stuck, I thought. All bets were off. What was good for the gander might just be good for the goose…..So, I told my husband to get out of the house until I could stop raging and wanting to kill him and go seduce the nearest unmarried person. I alternated between crying so hard my body shook, being so angry I almost broke my hand punching a door, and dolling myself up and flirting a little with strangers out in public. I don’t regret it. I survived being punched in the gut and having the wind knocked out of me, emotionally speaking, so I think its only fair and normal I came up swinging rather than being sweet and doing all the “right” things.

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Finally, one night I was crying in bed alone, my hand outstretched onto my husband’s now vacant side of the bed. Cold crinkled sheets. I can do this. I can survive this. I’ve lost loved ones, lovers before. I know how to suffer. I know how to feel like you are going to die…and yet survive. I started praying. Blubbering crying and praying. God reminded me of everything wrong I had ever done to my husband. How I wouldn’t marry him for so many years because I didn’t know if I could be faithful or not, 99% certain I couldn’t be. How I had messed up just weeks before we said “I Do” due to my fears creating a self-fulfilling prophecy and how, even in spite of my Herculean efforts at recovery, I had grown overly confident that I no longer could be tempted, allowed myself to be in a compromising situation and almost slipped and cheated while I was newly married, catching myself at the last second before going through with it. I realized that my husband had forgiven me much, as had God. But ultimately, the realization that was the most profound was that even if my husband wanted to see other people, I still wanted him to come home and be my best friend. I wanted him to come home to my bed, my body, my table, my food, his children every night.Heartbreak.jpg

There is no rational explanation. Just LOVE. Not co-dependency, because this isn’t insecure need out of fear of being alone (the thought of being alone actually excited me and relieved me in many ways), this is simply what I WANT and what I choose right now at this juncture. His pros outweigh his cons. I forgive him and he has forgiven me. And to me, that is love. 14 years. Plenty of reasons to leave, but more to stay and try. Maybe we could work towards reconciliation, I thought. When we had a heart to heart, he finally acknowledged the truth and shared that in counseling he had realized that he honestly didn’t trust me and thought I was still cheating on him which made it easy for him to do what he did. Maybe, I thought, instead of signing a lease at an apartment using our kids Christmas presents money as a down payment, he could just come home and we could work through this by the grace of God somehow…..It’s been tough…and beautiful…and surprising in so many ways. Surprising like that day at the winery falling back in love over wine. Except this time, we are falling back in love over honest, heart-felt conversations rather than the buzz of wine. I’m still figuring it out and realizing I don’t have to figure it all out. I can just let it unfold. The boys are super happy to have Daddy home. So am I. One thing is sure…I will never say never again after this year’s humbling lessons. I will just continue to wing it…together with my sons, my husband, and you all my sweet friends and strangers 🙂

 

 

 

 

 

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Bless Our Mess

My son’s occupational therapist shared with me something cute my 8-year-old shared with her at school. She said, “He said my house sure can be a mess sometimes, but its the best mess. Its my favorite place to be.” At first, I have to admit, I was mortified because I carry a little bit of secret shame about my free-spirited, “just trying to survive and stay sane as a working mom” housekeeping philosophy. But, then, I was struck with how profound my son’s statement really was. Our house, our family, ourselves sure can be messy, but messy can still be amazing. Messy can still be our favorite place to be. A big ole come as you are mess is actually quite comforting and endearing. You are always accepted and don’t have to clean up first and fit everything into a neat and tidy toy box. It’s the expectation of shiny, well-organized constant perfection that trips us up in so many ways, isn’t it? I honestly don’t want a constantly neat and tidy house. I want a sanitary house with clean dishes, the litter box scooped, enough clean clothes for the week and the trash taken off, but do I want floors with daily fresh vacuum lines and with toys neatly in their place or my son’s art supplies in perfect order at all times? No, I really don’t.

One of my favorite things about my Mom’s parenting style was that she was very relaxed when it came to her expectations of the house. She would rather let us relax, study, and play at home most days than to have a rigid chore chart schedule. There were times she asked for help or told us “alright that’s it, your room is a disaster its time to clean it up,” but overall there was always a sense of home being a place to rest, get schoolwork done, and to not have to be as tightly wound as the outside world expected. I want my kids to look back on their childhood the same way. That their home is the one place of constant refuge where they can kick back and relax, be messy, be themselves, but also a place where they can earn a dollar if they help Mama do the dishes.

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Of course, I’m not advocating never cleaning or letting your house be unsanitary, but I am all in favor of relaxing a bit and instead of shaming myself for my messy home, savoring the fact that this is my son’s favorite place and “the best mess.” My kids don’t care that my desk is overflowing with books and papers for the online class I teach. I’m thankful my youngest son’s room looks like a Lego explosion and he feels creative freedom and relaxation. I’m thankful my oldest son’s room is an explosion of stuffed animals and art supplies where he can shut the door and decompress after school. I’m thankful I can go to yoga or read a book instead of spending hours each day trying to get my home to look like a magazine. I do not enjoy cleaning at all because it is an exercise in futility and I don’t have the time to put any effort into futile pursuits my kids will just undo for me. Why spend an hour picking up Legos or hounding my son to do so when I could instead be playing Marvel versus Capcom with him or even just sitting by him on the couch reading a book, available if he wants to talk while he draws? He is just going to empty out the Lego boxes looking for the perfect Darth Vader helmet tomorrow anyway, so why bother? Ain’t nobody got time for that. I sure don’t. I work 3 jobs for goodness sake and take care of 2 boys, one of whom has special needs that take up any excess energy I might have. When you are just trying to survive as the parent of a child with special needs, you don’t have time to get neurotic about perfection. You start to accept and cherish the beautiful mess that is your life because your ideas about perfection were shattered the day you received that diagnosis.

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As I think and write, I realize that housekeeping tends to be a deeply personal issue for me and for probably most of us women. Men are pretty much off the hook because if someone comes over and the house is a wreck, no matter if the wife works just as many hours or not, somehow the spoken accolades or the passive-aggressive disapproval falls on her. Her only hobby  after working full-time should be cleaning and childcare right? That is the unspoken expectation so many of us feel. It is us women who frantically announce, “Ya’ll! Clean up NOW Grandpa is coming over in 2 hours!” as we bust out the mop, the vacuum, and the shovel for all of those toys simultaneously in a flurry of panic at the thought that our family member or friend is going to judge us harshly for slacking off and maybe playing with the kids or reading instead of non-stop cleaning.

Who do you allow into your home? I am very selective. I know which friends are my “safe friends” who I don’t have to clean up the house for if they want to swing by for coffee and these friends are the same ones I go to when something serious is going on in my life and I need to share my pain or my emotions without having them judged “a hot mess” or offering to “tidy up” my feelings for me either. There is something beautiful about accepting the messy parts of ourselves, our people and our homes. Let’s cut ourselves and each other some slack as we wing it through parenting, housekeeping, and realize we are all really a mess in one way or another. But we can find the love in our messiness. We don’t have to get it all in the toy box to be loved or enough.

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Sorry I Missed Your Call. I’m Busy Riding the Autism and OCD Parenting Roller Coaster.

When I was a little girl, my parents would take us to the county fair or to Six Flags over GA to ride roller coasters. I was always the type who would get on any ride or roller coaster not because I wasn’t terrified, but because I knew I wouldn’t die and that at the end I would be so exhilarated that I did it! Some of the rides were fun, but some I would just have to hold on tight and scream my lungs out to endure until the end. When you scream out “Stop the ride! Let me off!” no one hears you. They can’t stop the ride just because you want off or you think you are going to have a heart attack. No one cares. You can scream or cry all you want to, but it changes nothing. You just have to hang in there and endure. You have no idea when it will be over. It feels like forever. You can’t even really think straight to evaluate how far along in the track you are. You just hold on tight, scream, cry, pray, and try not to throw up. This is very similar to my experience as the parent of a child with autism who is going through the tween years and has recently developed OCD as well (because no, Lord, autism just wasn’t enough). It often seems as if just when I have caught my breath and think I’m gonna survive this thing just fine, I am thrown into another upside down loop de loop, tilt a whirl and I’m in danger of losing my lunch, my glasses, and looking pretty rough when I get off this thing. Thankfully, I get a chance to get off this roller coaster sometimes when my son is at school or at my mom’s when my husband and I have a date night, but even then it feels as if although I’m not actively riding it, I’m just standing in line, trying to settle my nerves taking deep breathes and waiting to get back on again.

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I love my son more than anything and we have beautiful, wonderful moments which are exhilarating like the moment when the roller coaster stops and you smile and laugh with glee because you did in fact survive this thing and the endorphins and adrenaline are pumping through your body. Woohoo! A sweet hug! Another milestone met! Another new word! Eye contact! Potty trained! He only turned the light switch on and off 11 times instead of the usual 12! But, watching him struggle so much in spite of all of the extra stuff I am doing and buying and trying….well it makes me want to scream “Ahhhh I  hate this ride! Someone get me off! I’m gonna puke again!” pretty often.

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ASD is a spectrum and presents in a lot of different ways for different kids and adults. You may have ASD yourself or have  a child who has ASD or OCD and it may feel like a walk in the park to you, I don’t know. All I know is my experience and my truth about how it feels to parent my particular child in my particular circumstances and it feels hard right now. Just when I think I’ve got a handle on things, here comes another loop I’m thrown for whether due to a new developmental stage, illness, finances, etc.

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I think people must assume that because I say  it is so hard, I’m just doing it wrong. I wish they could see how much time, money, energy, therapies, diets, supplements, now even medicine we are doing to try and help my son thrive and be happy day to day. I feel like I should be able to make this work somehow. I should be able to not look so frazzled or I should be able to stay in Mary Poppins mode and not ever raise my voice. I should just get up earlier to avoid looking disheveled and a mess at the morning drop off at school (nevermind I’ve been dealing with his sleep issues all night long and I work late two nights per week). I should pray (check, I pray almost constantly). I should work from home. He should take this supplement (yep, already taking it), we should try this diet (yep doing that), I should _______________ (not be writing about it?). I should change my perspective (yep in therapy myself trying to do that). There has to be something I could just fix and make this easier on myself. I wish there were. I spend hours each day researching how to make this better, how to be a better mom, how to accept this unusual life journey and find more joy in it, how to make my marriage survive this, how to help my other son cope, how to make extra money to fund my sons needs, etc. Although many of the things we have done for our son and for ourselves have helped tremendously, I am still working uphill just to get my son to the most basic level of functioning and to get my family to the most basic level of functioning. Even Pollyanna would admit that’s kind of hard.

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Each day is a roller coaster of stress and I am horrified at how I must appear from afar. This is not me. This is me just trying to survive. My son isn’t going to go into remission after his treatment. He isn’t going to be sick for a little while. This is a long-haul thing for us. A marathon, not a sprint. I feel like the main character from the movie “Bad Moms” who is just stressed to the max, except I don’t have the option of just telling everyone to take care of themselves for once, because my son can’t. So, I publicly apologize for seeming constantly scattered, self-centered, crazy, stressed out, no time for small talk, snappy with the front office staff at the school, not put together, too focused on my son’s ASD diagnosis, flaky, not a good friend, forgetful, not 100% on top of every little detail at work, not having the energy to invest into things that aren’t my business or I don’t care about anyway, frequently venting to my BFFs, always broke, not able to hang out much, bursting out in tears and saying “But I work 3 jobs and what we are doing now is already so hard!” when my son’s reading teacher asks me to do add extra homework, frequently not able to answer the phone, giving up on daily gym workouts, holding tight to my Saturday morning yoga time, not up for any kind of “fitness challenge” because my life is already a 365 challenge, or just distant and crabby in general. I apologize for being strangely open (oversharing) and also really defensive (pretty much not wanting to hang out with non-special needs parents much at all).

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This is my norm, this is my life. I am just trying to hold on tight, scream, and survive it without losing my lunch just like a kid riding a killer rollercoaster. I promise you that this has nothing to do with you, I really do like you a lot. I would love to be able to hang out with you more, to relate to your stories about your kids extracurriculars and how proud you are, to put more effort into my home businesses selling amazing things, to have more of a social life that is not online in nature, to laugh more, to volunteer more at church instead of crying through all the songs just to release all that stress, to be able to just throw my kids in the mix of all the other kids at church and go chit chat with the other moms rather than having to go sit next to my son and try to hold back my tears as I rub his back while he’s biting himself and rocking back and forth because the music is too loud and there are too many kids having too much fun in there.

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Maybe we all have our roller coasters, I don’t know what goes on behind the closed doors of your mind or home, but I do know that it really does help to just let it out and scream your head off sometimes when you need to, to hold on tight to the people you love, throw your hands up and laugh hysterically sometimes, breathe deeply, and remember that you won’t die even though you may feel like it on the loop de loops. We special needs parents will survive as we wing it together. If you need to talk to someone who “gets it”, call me. It will likely go to voicemail, but I will call you when I’m driving alone in the car. Reach out to Parent2Parent or a support group. You don’t have to ride the roller coasters alone, there are plenty of seats and we can hold hands and scream together as we go through the dips and curves.

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Always Struggling? What God is Teaching Me About Success and Humilty

Do you ever feel like the struggle is just all too real and all too constant? “What am I doing wrong here?!” you may ask yourself. Been there. Still there. Where did we get this message from the world and start buying it that success = ease and plenty? That we should be embarrassed by our struggles and seek to portray ourselves as “winners” rather than just struggling people saved by the grace of God?

In the course of living my life as a working professional and mama to two boys with special needs, I have found that in spite of my best efforts and many prayers, feeling like I have it “together” typically only lasts for a few hours here and there scattered among days that are exhausting, filled with challenging behavior and sleep deprivation that requires constant patience and “therapy mom” mode, then having to go into work acting like I’m the “with it” professional who can garner respect and making sure all of the paperwork for my son’s therapies and insurance is completed in a timely manner. I’m almost always at least mildly struggling. I’m always coming up short. I am not perfect. The pictures I post on social media don’t show my struggles. I’d really rather not be lookin’ all busted in my pictures, but you should see me as I walk my kids into school in the morning lookin’ a hot mess (I go home and get ready for work after I drop them off). I definitely do not have it together. One bit. Just doin’ the best I can over here.

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 I want you to know that YOU ARE NOT FAILING AT LIFE JUST BECAUSE YOU ARE STRUGGLING THROUGH LIFE.  When did struggle become shameful? There is so much freedom in hearing a friend say “me too” and realizing you aren’t the only person going through it. I find comfort in God’s Word. God never promised us that we would be free from struggle or weakness, only that He would never leave or forsake us in it. The world’s image of “winning” was NEVER the standard on which we are meant to judge our “success.” He said we should boast in our weaknesses, that His strength is made perfect in weakness.” I actually hate the word “success” because it brings to mind all of the worldly definitions of  “winning” and “success” being financial prosperity, vacations, beauty, health, lack of struggle and strife and also how  many “successful” people look down on those who are “unsuccessful” as if the advantages they have had in life had nothing to do with their “success” as they claim the glory for themselves rather than giving full glory to God in utter humility for every single blessing received from innate intelligence to being born to a loving family to having good looks to being able-bodied and able-minded.

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This idea that lack of struggle = “success” is so dangerous and discouraging. It isn’t from God or at least what I’ve read in the Bible. Sure, sometimes we bring struggle upon ourselves by acting like little kids who throw caution to the wind and do whatever we want regardless of it being wrong (like a little kid who eats all of the Halloween candy in one sitting and then spends the night throwing up asking “why am I so sick mama?” because all that sugar at once made them sick.)  We can’t blame God when we just act dumb or lazy, go against His advice and knowingly YOLO it. But, I’m not talking about messing up on purpose. I’m talking about doing the best you can, looking to God for guidance every day, and still struggling through life. That doesn’t mean we are doing life wrong or that we are just “unsuccessful” or “ineffective” losers. Take heart. Be encouraged.

Here is what God’s word actually says about suffering and struggle:

2 Corinthians 12:9-10 ESV   

But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me. For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong.

1 Corinthians 10:13 ESV 

No temptation has overtaken you that is not common to man. God is faithful, and he will not let you be tempted beyond your ability, but with the temptation he will also provide the way of escape, that you may be able to endure it.

Romans 5:3-5 ESV 

More than that, we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.

Jeremiah 29:11 ESV 

For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope.

Psalm 23:1-6 ESV 

A Psalm of David. The Lord is my shepherd; I shall not want. He makes me lie down in green pastures. He leads me beside still waters. He restores my soul. He leads me in paths of righteousness for his name’s sake. Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me. You prepare a table before me in the presence of my enemies; you anoint my head with oil; my cup overflows. …

Luke 18:9-14 ESV     

He also told this parable to some who trusted in themselves that they were righteous, and treated others with contempt: “Two men went up into the temple to pray, one a Pharisee and the other a tax collector. The Pharisee, standing by himself, prayed thus: ‘God, I thank you that I am not like other men, extortioners, unjust, adulterers, or even like this tax collector. I fast twice a week; I give tithes of all that I get.’ But the tax collector, standing far off, would not even lift up his eyes to heaven, but beat his breast, saying, ‘God, be merciful to me, a sinner!’ …

John 1:5 ESV

The light shines in the darkness, and the darkness has not overcome it.

Romans 8:1 ESV 

There is therefore now no condemnation for those who are in Christ Jesus.

Philippians 4:13 ESV 

I can do all things through him who strengthens me.

James 1:2 ESV   

Count it all joy, my brothers, when you meet trials of various kinds,

Hebrews 13:1-25 ESV 

Let brotherly love continue. Do not neglect to show hospitality to strangers, for thereby some have entertained angels unawares. Remember those who are in prison, as though in prison with them, and those who are mistreated, since you also are in the body. Let marriage be held in honor among all, and let the marriage bed be undefiled, for God will judge the sexually immoral and adulterous. Keep your life free from love of money, and be content with what you have, for he has said, “I will never leave you nor forsake you.” …

2 Corinthians 10:3-5 ESV

For though we walk in the flesh, we are not waging war according to the flesh. For the weapons of our warfare are not of the flesh but have divine power to destroy strongholds. We destroy arguments and every lofty opinion raised against the knowledge of God, and take every thought captive to obey Christ,

1 Corinthians 2:1-16 ESV     

And I, when I came to you, brothers, did not come proclaiming to you the testimony of God with lofty speech or wisdom. For I decided to know nothing among you except Jesus Christ and him crucified. And I was with you in weakness and in fear and much trembling, and my speech and my message were not in plausible words of wisdom, but in demonstration of the Spirit and of power, that your faith might not rest in the wisdom of men but in the power of God. …

 

Matthew 7:1-2 ESV 

“Judge not, that you be not judged. For with the judgment you pronounce you will be judged, and with the measure you use it will be measured to you.

Exodus 14:14 ESV 

The Lord will fight for you, and you have only to be silent.”

Romans 14:10-13 ESV 

Why do you pass judgment on your brother? Or you, why do you despise your brother? For we will all stand before the judgment seat of God; for it is written, “As I live, says the Lord, every knee shall bow to me, and every tongue shall confess to God.” So then each of us will give an account of himself to God. Therefore let us not pass judgment on one another any longer, but rather decide never to put a stumbling block or hindrance in the way of a brother.

Psalm 71:20-21 ESV 

You who have made me see many troubles and calamities will revive me again; from the depths of the earth you will bring me up again. You will increase my greatness and comfort me again.

1 Peter 5:10 ESV    

And after you have suffered a little while, the God of all grace, who has called you to his eternal glory in Christ, will himself restore, confirm, strengthen, and establish you.

2 Corinthians 1:9 ESV 

Indeed, we felt that we had received the sentence of death. But that was to make us rely not on ourselves but on God who raises the dead.

Acts 14:21-22 ESV    

When they had preached the gospel to that city and had made many disciples, they returned to Lystra and to Iconium and to Antioch, strengthening the souls of the disciples, encouraging them to continue in the faith, and saying that through many tribulations we must enter the kingdom of God.

Isaiah 40:28-31 ESV      

Have you not known? Have you not heard? The Lord is the everlasting God, the Creator of the ends of the earth. He does not faint or grow weary; his understanding is unsearchable. He gives power to the faint, and to him who has no might he increases strength. Even youths shall faint and be weary, and young men shall fall exhausted; but they who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint.

Romans 5:8 ESV    

But God shows his love for us in that while we were still sinners, Christ died for us.

Romans 8:18 ESV          

For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us.

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I find it hard to hold my head high with my struggles sometimes, but maybe that’s the point. Thank you God, for humbling me daily and bringing me to my knees so that I can go to work and meet my clients who I counsel in a place of my own suffering and humility that I may never make the mistake of implying that life is about “lost” versus “found” and “successful” versus “unsuccessful” people. I am lost and found daily. I am both successful and unsuccessful daily. Thank you Jesus for always finding me and giving me what I need rather than what I want as I wing it through this life…

P.s. I know I whine more than I should, please forgive me and keep giving me what I need, not what I want. Also, if you could make my kids behave better and give me more patience that would be much appreciated. 😉

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No Daily Meds?! My Family’s Holistic Health and Special Needs Journey

Thanks to my husband’s passion for gardening, I’ve started playing in the dirt again myself. The first lesson I learned is that gardening is really a metaphor for all life. If a plant is in unsuitable soil, it won’t thrive. If a plant’s roots aren’t doing well, it won’t produce healthy leaves or anything edible. Also, every plant species is unique. Some can thrive in pretty crappy soil and extreme temperatures, while others are more delicate and die off unless they are in lovely, nutrient rich soil and kept at certain temperatures. It is important to figure out what the root issues are when you have a plant that isn’t thriving. Get the soil tested, look for bugs, fungus and the like, supplement the soil if it is depleted, make row covers or hoop houses to protect from extreme temperatures, etc. With plants, we don’t just slap a band-aid and some Miracle-Grow on the withered leaves and call it good enough, we figure out what is really going on or call that plant a total loss.

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Why then do we treat our bodies and the bodies of our children worse than we do our plants? In our society when we have a physical or mental health crisis, we just go to the doctor who gives us a few medications or offers to cut us open and we change nothing else because this is our paradigm and we don’t know what else to do. It has even gotten to the point that doctors are flabbergasted when I tell them my son isn’t on any medications for his autism. “But he is doing so well….” and then they ask if I want meds (bangs head on desk, you just said how well he is doing, no I don’t want any free samples thanks). Doctors don’t typically ask about our “soil” or the environment we are in. When was the last time your doctor asked you if you hated your job or if your husband was abusing you or how your daily nutrition/exercise regimen was going? We are just given pills (sometimes pills we don’t need or pills that have worse side effects than the issues we had) and we go on as usual. Ain’t nobody really got time for real health in managed care. But, if we really want to be healthy, we might have to look at our environment, our lifestyle, our habits, our nutrition, our priorities, and realize that just because something is covered by insurance doesn’t necessarily mean its a long-term health bargain.  While modern medicine certainly has its place, particularly in treating congenital malformations and acute health crises (infections and traumatic injuries), chronic illness tends to be better served by figuring out what is at the root of it. Perhaps it is something that can be helped by surgery or medication, but what if there was another way to treat and truly heal many common chronic conditions? What if there was a way to heal and improve conditions that doctors just don’t know the cause of or how to heal?Holistic_health

 

cureproblemThis is my experience of trying that other way, a more holistic way. How in the world did I stumble upon all of this? I got started down the holistic health journey when I took the first job I could find to get out of a really bad work environment which was causing me anxiety and depression. The first job I found happened to be as a receptionist at a local naturopath’s office inside a healing arts spa where I was introduced to all sorts of funky and amazing things that I had never experienced before such as essential oils, probiotics, drinking lots of water with mineral drops and fruit in it, massage, detoxification, nutrition, naturopathy, yoga, and so much more. Not only did my anxiety and depression go away within a week or so of leaving the toxic work environment and coming into this positive environment, it just so happened that a few months after I started this job, my oldest son was diagnosed with autism spectrum disorder. He wasn’t talking at 3 years old…at all. He was having intense behavioral problems that broke my heart daily. He had to go to a special needs school because typical daycares couldn’t handle his behavior. I was told there was nothing to do but put him in therapies like speech therapy, occupational therapy and physical therapy and try medications to control his behavior. I was told my son probably wouldn’t ever talk and would become even harder to handle as he got bigger and stronger. I was terrified and so sad it was physically painful.

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Never underestimate the research abilities of a special needs mama on a mission to help her child feel better and thrive!

We did the therapies, I prayed so much. I just couldn’t put my baby on powerful psych meds.  I don’t judge you if that is the route you chose to go, but personally it is unacceptable to me to put my 3-year-old son on powerful, psychotropic medications (with all of their side effects and serious warnings) which are not approved by the FDA or the American Academy of Pediatrics for use in children under the age of 6. Research (much less longitudinal studies) on the use of psychotropic medications in preschool age children is seriously lacking. What if these drugs made my poor baby’s brain worse? What if his sleep and eating got worse? Sure, psychiatrists and even some pediatricians use these drugs on young children “off label” saying the benefits outweigh the risks in some cases, but I say that we parents have no idea what the real risks even are without adequate peer-reviewed research and longitudinal studies to determine if these medications actually have positive long-term outcomes or if they cause long-term health problems, brain damage, or even addiction.

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No thanks, Doc.

So that said, in my desperation as a mother, I decided to have the naturopath test my son for nutritional deficiencies, heavy metals, etc. and give me gentle nutritional remedies for my son’s sleep issues, stomach issues, and agitation. My son ended up testing for a B vitamin and magnesium deficiency. We also added cod liver oil (rich in brain-building, focus increasing omega-3 fatty acids), probiotics and bovine colostrum (for healing gut issues) to his daily protocol. Our whole family started taking Juice Plus+ gummies (which are a blend of the juice and pulp from 17 fruits and veggies) because he was such a picky eater at that time. I started giving him nightly massages with lavender infused olive oil and giving him plenty of time in the bath to relax his hyperactive sensory system. We did horse-assisted OT and ST. He had PT and went 3 days per week to the early-intervention preschool program. We learned about the Son-rise program (check it out on Youtube for free). We kept him on a balanced routine of peer interaction and time to rest at home. We love him and try our best to treat him with kindness and respect.

The results were nothing short of MIRACULOUS! He started talking, he started sleeping better, his stomach issues went away, he started eating more foods, his meltdowns decreased dramatically, and now at age 10 he is still psych med free and is THRIVING. He is communicating and reading on or above age level. He hasn’t had a single meltdown in years. His personality is funny, empathetic, and kind. He actually has fewer behavioral problems than most typical children. He sleeps from 9pm-6am every night. He talks non-stop and is currently going on and on about GhostBusters and the Brutus the Dog show he wants to make when he grows up. He went from severe, non-verbal autism that prevented us from going out to eat, to church, to the movies, etc. as a family to just a quirky, happy little guy who loves to go out and about anywhere our family decides to go. Sure, he still flaps his hands and jumps a lot when he is excited about something. He still needs a stable, predictable daily routine. However, his quality of life has so dramatically improved that I no longer feel any sadness or worry about his future. I no longer suffer from extreme sleep deprivation and exhaustion. I know he will be ok and finally I am ok.

Im-not-telling-you-it-is-going-to-be-easy

What is more, my youngest son started developing “tics” such as rapid eye blinking, throat clearing, shoulder shrugging, etc. after a bout of strep throat last year. The tics kept getting worse. I took him to our naturopath and he suggested magnesium cream to calm the nervous system, probiotics, and immune-boosting herbs in case there was a lingering sub-clinical viral or bacterial infection. My son’s symptoms improved, but lingered. Then, because I had so much success with acupuncture curing my migraines and anxiety, I took him to have acupuncture done. He has been “tic-free” ever since that session months ago!

My own health has dramatically improved ever since I started to understand that in order to experience real health, you must look for and treat the root causes of imbalances and health problems. It all started with getting out of the “bad soil”, the bad environment of a hostile and abusive work environment. What if I had just stayed there and popped some depression and anxiety pills to keep on truckin’? I wouldn’t be the happy, healthy person I am today. My kids wouldn’t have had a mother who could help them improve their own health. I think of people who are stuck in bad marriages, bad jobs, or self-sabotaging habits and thought patterns and my heart breaks because no amount of pills will be a true cure until they find a way out of toxic soil. You know the saying that before you diagnose yourself with depression, make sure you aren’t just surrounded by a-holes? It’s true. Creating a positive, healthy environment at work, home, etc. is a great starting goal when working towards physical and mental health.  It’s ok to take a chance on making a change. Even though it was scary, I will always be thankful that I took the first job I could find in order to get out of a bad environment. I am also thankful that I didn’t just accept having chronic migraines and trigeminal neuralgia and accept all of the pain medications the MDs wanted to give me. I tried acupuncture and Traditional Chinese herbs and have not had a migraine or nerve pain in 4 years now! I take no meds daily either.

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I thank God for our family’s good health and for leading me to stumble upon this passion for holistic health that doesn’t just pop pills to cover the symptoms but finds the root cause, treats it with nutrition, herbs, acupuncture, exercise, yoga, avoiding toxic chemicals such as MSG, lab-made dyes, and toxic beauty and cleaning products.

I am often told that holistic health is “just too expensive” or “out of my price range” and to that I can only respond with my personal experience. I have never been rich, a kept woman, and I’ve never even had more than a thousand dollars in the bank at one time. I made about $1200 per month when I first started on this journey and would use one of my paychecks per month on the supplements and treatments my children and myself needed. I have found ways to prioritize the things I need for my health and my children’s health by cutting costs elsewhere. No, we don’t need a new game, gadget, clothes, beer or to go out to a movie. I do need to buy $50 of magnesium, cod liver oil, B vitamins, probiotics, and some lavender oil this month for my sons. I will also spend $50 on our family of four’s Juice Plus+ monthly order. So, $100 per month on supplements. Not free, but do-able if I prioritize. Sure, I could pay $0 for some psych meds for my son thanks to insurance, but that may not be a bargain if they are just zombifying him temporarily and stunting the growth of his brain and body long-term, creating more problems that I will eventually have to face with his behavior and health. Even though it means working some extra hours while my kids are in public school and only shopping at thrift stores, I will find a way.

prioritize

Of course, this is not to discount the struggles of people who are literally struggling to keep a roof over your heads and food in your mouths. Even if you are in that tough situation, there are things you can do in the short-term (as you are trying to improve your financial situation long-term) to increase health such as applying for SSI so that you have the money to buy some supplements, using free resources online or at the local library to learn about natural healing methods (check out anything by Dr. Andrew Weil), using food stamps and WIC to buy canned and frozen veggies and fruits to get some extra nutrition into yourself and your kids and taking everyone to the park for some exercise on a daily basis (especially those ADHD kiddos who need 3 times the amount of physical exercise than typical children). Many of us are perfectly able to find creative ways to cut back on buying things we don’t really need, find ways to generate a little extra income, and using free resources to get our kids active and healthy.

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Even if you are on a tight budget, exercising in nature is one step in the direction of holistic health!

 

I don’t write this post up on a high-horse or to judge anyone. I write it as a summary of our journey towards health and healing in case anyone else out there is wondering how to get started or if it is ok to try things other than meds for your 3-year-old on the autism spectrum. Nowadays, it is almost a rebellious act to choose natural healing as the first thing to try over just jumping into medications. I want other parents to know there are success stories, even if your medical doctor isn’t aware of them or won’t tell you about them because they are “only anecdotal”. I want you to know that I am still human and struggle to make healthy choices and sometimes I just throw caution to the wind and eat whatever sounds good. My youngest son is a little chubby even though we don’t keep unhealthy foods at home (thanks Grandma). My immune system is much stronger now than it has ever been, but I actually got such a bad case of strep throat last year (thanks to a lack of rest, the stress of my van breaking down with thousands of dollars in repairs needed, and sucking at self-care for about a month) that I had to have an antibiotic shot in the butt due to strep-induced inflammation causing heart palpitations. I was thankful for modern medicine on that day. But, I learned that I have to stop skimping on sleep, stop working myself into a frenzy stressing about money, and do better with self-care in general.

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It is an ongoing process choosing to move towards getting healthier each day. My hope is that we all can change the paradigm from one of thinking meds or surgery are the only options for mental and physical illnesses to a paradigm of making habits that promote health and wellness the top priority day to day and becoming aware of the host of holistic options that are available to us when we are in need of healing. Be informed. Be well. Treat the roots that the branches may blossom. May we all thrive as we wing it together towards a healthier body, mind, and spirit.

 

 

When Taking a Sabbatical Isn’t An Option: Inside My Life as a Working Mom and Special-Needs Parent

“You’re 5 minutes late again, Jen. Is everything alright?” my former boss questioned me…again. I wanted to be honest. I wanted to tell the truth, but the truth was that my son’s autism wasn’t going to go away, I still had to keep this job, and it wasn’t my boss’s problem. It wasn’t something someone who isn’t the parent of a child with special needs will ever understand on any level anyway. I’m sure my boss assumed I was just having trouble with “time management” or taking too much time getting a latte (which I couldn’t even afford) when the truth was and is that I have trouble with “life management.” If I didn’t HAVE to work to keep a stable home, the lights on, the water running, food in the pantry, clothes on my kids backs and shoes on their feet, I wouldn’t. I would have taken at least a season off. I would have at the very least taken the season off from work when I had a newborn and was driving 2 hours to Atlanta for testing and therapies for my 3-year-old son who was being diagnosed with autism.

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This was the season when my heart was breaking and I would collapse in tears on my pillow every night after completing yet another 10 pages of paperwork fighting to get him the early intervention services that I was told would make or break his future functioning (no pressure or anything lol)  that I couldn’t afford on my own. It was the season when I kept my make-up bag in the car so that I could put my make-up on when I pulled into the parking lot at work so that no one would notice (hopefully) my red, puffy eyes from crying on the drive into work when my son had yet another meltdown when I had to drop him off at his special-needs preschool. Thank God we even have a special needs preschool in my town so that I could put him in daycare. He couldn’t function at a typical daycare center. It was the season of covering up his claw marks on my arms with long sweaters some weeks. It was the season where he gave my mom a black eye from flailing around during a meltdown. It was the season when I was not only working, but trying to finish my Master’s degree so that I would be able to work part-time and actually make a living wage. I knew working full-time would never work for me and my son’s needs. Someone has to take him to therapy appts twice per week, he cannot stay in a typical after school care program (he can barely hold it together behaviorally during the school day), and I knew that I would not be able to have the patience and energy to deal with his challenges if I was drained from a 40+ hr work week. So, I worked 30 hrs per week while I attended graduate school full-time. It nearly killed me. I wasn’t the best, most patient mom during this time. But this was the only way I saw to make it to a sustainable lifestyle. I did survive by the grace of God and threw myself over that finish line, walked the stage and got my Master’s in Clinical Counseling Psychology.  I collapsed in bed with a migraine that lasted for a month after graduating. Thank God I had enough money from student loans to take one month off to try and heal my body and mind.

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Thank God, after an exhaustive job search, I was offered the first job that didn’t require a long commute giving community awareness presentations and working with women and children who have experienced trauma in my town. I am still there today because I find my work fulfilling, but also because it is a family-friendly workplace where I get some limited benefits and a stable, predictable salary. I feel like my bosses care about me and I could tell them if I needed to take time off for my son. I make a decent enough living and work outside the home only 20 hrs per week. I supplement my income teaching online college classes here and there. It’s not enough to have a savings account, take vacations, or feel “set,” but I know I won’t be in danger of being homeless or unable to meet my children’s basic needs.

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I often felt like if I could just be a stay-at-home mom, then maybe I wouldn’t feel like a basket case all the time. There is nothing worse that having people look at you with that, “is she alright?” look at work. No, I’m not alright. I struggle every single day. My child requires more from me than typical children do. He has had sleep issues (thank God finally resolved with natural supplements, but he didn’t sleep through the night for 6 years), he requires a strict routine and I can’t just make him run to the grocery store with me because I forgot the ketchup and he’s demanding ketchup. I have to keep him on an even keel by making sure he has time for relaxation, to sit on the potty at the scheduled time, to go to his therapy appointments. He requires so much love and patience. He has taught me so much love and patience. Did I mention I also have another child 2.5 years younger than him? I have to deal with the challenges of a sibling who is frustrated with his brother’s special needs. I mediate fights and try to understand both their viewpoints. Putting on my game face for work and acting “put together” and “professional” isn’t easy. I don’t have time to accessorize or do my hair, so its usually in a messy bun. I could be having an full on panic attack and you wouldn’t even notice because I have trained my mind and body to just sit there and ride it out, knowing it will end at some point. Anxiety is a liar I don’t have time to listen to. I used to feel like a big, fat phony. Now, just feel strong. I survive my challenges and my life everyday.

I’m a warrior, I soldier on for my son every day. I don’t completely unload my whole story and all my struggles on my co-workers, but I’m honest enough about the fact that I have struggles and I know what its like to be past your breaking point and still soldiering on because that’s what we good mamas do for our kids.  I think that makes me a better counselor, especially for other parents who have special needs children or have trouble finding ways to balance all of the demands of life. It doesn’t make it easy. I invest some money each month on self-care so that I don’t end up in the mental ward or dead from a heart attack. I have to take care of myself or where will that leave my kids? Without a functional mama. So, I do yoga, I pray, I listen to music, I journal, I get acupuncture when I can afford it, I get cheap massages from the local massage school, I garden and run around with my kids in the yard. I thank God I have a home and a yard.

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Sometimes, now I think that working has been good for me. Not having the option to stay home means that I have always had to pull my $#@# together every day, even if I don’t think I can or I don’t want to. I don’t have the option to sink into alcoholism, addictions, self-pity or depression. I have to “just keep swimming, just keep swimming” and that keeps me from sinking down deep. I can’t sink or my kids will sink with me and they don’t deserve that. They deserve my all, my best. I refuse to fail them as long as there is breath in my lungs and my hands are able to work. Work demands my all, my best as well. So I have to find ways to be my best me, to cope effectively. Yes, my ultimate daydream is to be a kept woman, but knowing that is about as unlikely as a winning lotto ticket, I just keep going. I cry, I scream and pound the steering wheel of my car when I’m alone in the car sometimes, I call my mom or my best friend and get out my “its not fair, this sucks” moments. I listen to songs that make me feel like God has me and I’m strong like:

You might be thinking I’m a single mom as you read this. I’m not. Times are just tough and they always have been. My husband has always tried his best, but he has had some tough stuff to deal with too, like lay-offs and being unable to finish school due to caring for his sick father and trying to support their family when he was only 19. Now, he has health issues himself. He works hard, but without a college degree or hulk-like physical strength to do manual labor in a 105 degree factory all day, he has never been able to fully take care of our family’s financial needs by himself. I know it breaks his heart and his pride watching me struggle. We live frugally. We have a tiny house, used cars, thrift store clothes, discount shoes. We are not snobs, but I refuse to live in the projects where I can’t sleep in peace at night. I need a car to get my son to his appts. My son requires a lot of vitamin and mineral supplements to help his behavior, sleep, and stomach issues. My son’s therapies require co-pays. I have had to buy things to help him learn and communicate better like an iPad. There are so many extra costs that come with his needs. It is what it is. But he is worth it. And I will do my best. Thankfully we have extended family support if the car breaks down or the pipes burst. That support for emergency needs is more than many struggling families have. hope

This is my life. It is raw and honest. I would be lying if I said I didn’t ask God, “why?” sometimes. But usually the still small voice in my heart just reminds me that I am strong and I can learn. If God only gives us what we can handle, apparently I’m just a bad-ass.

But on a serious note, I give thanks that all of my prayers for my son have been answered. I have prayed over him every single night with tears flowing. He is thriving in spite of his challenges. He speaks (not only speaks, but articulately and with a beautiful vocabulary) and he has not had a meltdown in 3-4 years. He has friends, loving teachers, an accepting church family, and kind therapists. He finally started sleeping well and using the potty. He still needs peace and calm in his daily life. He still can’t go to the after school program, but that’s ok. We are making it. He is making it. Living on the love of God and family, we just keep winging it. Giving up is not an option. We will wing it together.